We are excited to announce our involvement in a programme, produced by Genetic Alliance UK and ITN Business.
Anchored by journalist and presenter Hannah Vaughan Jones from the ITN London studio, the programme looks at how rare conditions can be complex and life limiting, often with a long diagnostic journey and delayed treatment.
With advanced technology, genetic science, treatment and management - together caring for rare disease - can make all the difference.
In our item, featuring Volv Global SA we explain what we do, to help closing the diagnostic gap, accelerating a patient`s access to treatment, and improving the outcome of those living with rare disease, such as Fabry and Pompe disease.
Now available to watch online here (with subtitles).